ALS Ice Bucket Challenge Progress

The ALS Association

  Monthly e-Newsletter of The ALS Association Greater Sacramento Chapter


August 2022


Greater Sacramento News & Upcoming Events

Greater Sacramento Highlights
Proudly Serving 24 Northern California Counties

Walk To Defeat ALS

We are so excited for the upcoming Walk to Defeat ALS on Saturday, September 16th at Elk Grove Regional Park! Grab your favorite running shoes and sign-up to walk today either as an Individual or a Team! Funds raised will help those living with ALS and their families. Yes, I want to Walk to Defeat ALS!

Already signed up? Don't forget to fill out the simple online form so we can begin designing your "Why We Walk" sign that will be placed along the Walk route. In Honor or In Memory, these signs remind us all why we are here to Defeat ALS! Yes, I want a "Why We Walk" sign.

For more information on Walk to Defeat ALS, please contact Stephanie Cardenas at

Greater Sacramento eNewsletter Highlights:

1. Legacy Society
2. Caregiver Wellness Workshop: Muscle Mechanics
3. Respiratory Therapy
4. Upcoming Virtual Support Group Meetings
5. Become a Volunteer

Click here to read more.


The ALS Association and ALS Finding a CureŽ Commit $2M to Speed Up Diagnosis

The ALS Association and ALS Finding a CureŽ have awarded seven new grants worth a total of $2 million over the next three years to support the development of early diagnostics for ALS.


The Importance of Focus on Mental Health When Living with ALS

Melissa Enfinger, a care services director for The ALS Association based in Alabama, knows the importance of mental health when dealing with ALS. Melissa recently joined us on a Connecting ALS podcast episode to help us better understand the role wellness plays in making ALS livable and improving a person’s quality of life and share information about a mental health networking program she is spearheading to help the ALS community.


ALS Around the Globe: Bringing the Power of Music to the ALS Community

As ALS progresses, the ability to participate by playing and creating music can become more challenging with the loss of motor function. But that doesn’t mean the ability to create music, and the ability to collaborate with others around music is entirely gone. Enter DuoRhythmo.

Artist Inspires Creative Pursuits for the ALS Community

After retiring from a 50-year career in computer technology in 2015, Ken Baltes was finally able to follow his creative interests and focus on his passion for the arts. After he was diagnosed with ALS in 2020, he made it his goal to bring his love of the arts to others who are living with ALS.


Caring for the Whole Person—A Wellness Approach to ALS Care

Focusing on caring for a person’s overall wellness is an important part of ALS multidisciplinary care. For people living with ALS and their families, the disease impacts every aspect of life, not just physical wellness, but also emotional, spiritual, social and financial wellness too.


Researcher Spotlight: Caiwei Guo, Ph.D., 2022 Milton Safenowitz Postdoctoral Fellow

We talked with Dr. Caiwei Guo, a postdoctoral fellow at the Stanford University School of Medicine, to learn more about her research, as well as her interests outside the lab.

Researcher Spotlight: Jayakrishna Shenoy, Ph.D., 2022 Milton Safenowitz Postdoctoral Fellow

We talked with Dr. Jayakrishna Shenoy, a postdoctoral research associate at Brown University, to learn more about his research, as well as his interests outside the lab.


Brooke Eby: Using Humor to Spread Awareness of ALS

Diagnosed with ALS in March 2022 at the age of 33, Brooke Eby is using her innate sense of humor and positive outlook on life to help raise awareness and funding for ALS research.


New ALS Focus Survey: Mobility at Home

A new ALS Focus survey is open! People with ALS and caregivers — share your experiences with in-home mobility equipment and help make a difference for the entire community.


Honoring Donna J. Seggebruch

Donna and Steve Seggebruch first met at a friend’s wedding in 1974 and a year later reconnected for a first date. “There was a spark there from minute one,” Steve recounted. “In 1976 we were engaged and then married in 1977 and spent 45 years happily married.” Steve lost Donna to ALS last year and is now honoring her legacy by launching The Donna J. Seggebruch Legacy Challenge.


Podcast Episodes

Action Plan Being Developed to Make ALS Livable
Recorded on August 17, 2023

Your host Jeremy welcomes Kathleen Sheehan, Vice President of Public Policy at The ALS Association, for an update on the National Academies of Sciences, Engineering, and Medicine Committee’s action plan to make ALS livable and to accelerate the search for treatments.

Racial Disparities in Time to Diagnosis
Recorded on August 10, 2023

Jeremy talks to Dr. Kelly Gwathmey, Chair of Neuromuscular Neurology at Virginia Commonwealth University, about recent research showing racial disparities in the time it takes to confirm an ALS diagnosis.

Prioritizing Wellness While Living With ALS
Recorded on August 3, 2023

Jeremy kicks off National Wellness Month with Melissa Enfinger from The ALS Association’s Care Services team.


Learning Opportunities

Addressing Respiratory Challenges in ALS
Monday, September 18, 2023, 2:00 p.m. ET

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Citrus Heights, CA 95610
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