ALS Ice Bucket Challenge Progress

 
The ALS Association

  Monthly e-Newsletter of The ALS Association Greater Sacramento Chapter

 

November 2022

 
 

Greater Sacramento News & Upcoming Events


Greater Sacramento Highlights
Proudly Serving 24 Northern California Counties

Year End Celebration of Gratitude

 

Year End Celebration of Gratitude

A huge thank you to everyone who attended and supported our 2022 Year End Celebration of Gratitude on November 11! Every year, the amazing people who make up The ALS Association in the greater Sacramento area come together to recognize the incredible work that has been accomplished. We celebrated having our very first $100k+ walk team, launching the first CEO Soak on the West Coast, returning to in-person support groups and creating an entire department dedicated to the care of our caregivers. We were honored to also have those living with ALS and their caregivers in attendance, setting an event record of how many joined us! To see just how much fun we had, check out photos from the event on our Facebook page.

 

 


Greater Sacramento eNewsletter Highlights:

Our offices will be closed Monday, December 26 - Monday, January, 3
Care Services staff will continue to check their email and voicemail during this time.

1. Caregiver Retreat in January
2. In-Person and Virtual Support Group Meetings
3. Funds Awarded Benefiting Our ALS Community
Click here to read more.



 

Seeking Justice for ALS Veterans

In 2008, the Department of Veteran Affairs established ALS as a service connected disease. In doing so, the VA made it possible for veterans who were diagnosed with ALS to receive compensation based disability, grants for housing, vehicle modifications and much more. A veteran's spouse and dependents may also be eligible for benefits, but a quirk in the law governing survival benefits means that spouses of veterans are being denied access to survival benefits after they lose their loved ones.

 

An ALS Veteran Story, with a Twist

As with hundreds of thousands of veterans, Michelle served her country honorably, eventually attaining the rank of captain, and moved on to a civilian life of work and family. But life wasn’t done with twists and turns for Michelle. In 2011, she began experiencing some muscle twitches. She didn’t think much of it at the time, and certainly didn’t suspect anything serious. “The chances of having ALS are miniscule and I never dreamed that would be my diagnosis,” Michelle says. But it was.

 

ALS Association Fights for Greater Support for Family Caregivers

We filed comments with the Family Caregiving Advisory Council supporting legislative and other policy changes to support family caregivers. In our comments we focused on three key issues to support family caregivers in the ALS community.

 

Caregiver Education Course: The Helping Hand of Knowledge

For someone facing the daunting challenge of becoming an ALS caregiver, there are many paths to gaining the knowledge and experiences they need to care for someone with the disease. Regardless of how you prefer to learn, one thing everyone can benefit from is a reliable source of information, which can be found in the new ALS Association Caregiver Education Course.

 

Kristina Woody, Full-Time Nurse, Wife, Mother and ALS Caregiver

Kristina met Lamar Woody in high school. Little did she know then she would not only become his wife and mother of their beautiful daughter, Natalie, but she would also become his ALS caregiver.

“Lamar Helped Me Find My Voice”

Kayla met Lamar Woody back in 2017 at the music store where he taught voice and piano lessons. As her very first vocal coach, Lamar will always have a special place in her heart. He not only taught her how to sing and use her voice, he taught her about ALS.

 

New ALS Focus Survey is Now Open

People with ALS and caregivers — share your experiences about health insurance coverage and help us make a difference. The ALS Focus Insurance and Payment for ALS Care Survey is open through December 16, 2022.

 

Podcast Episodes

Her ALS Story
Recorded on November 17, 2022

Your host Jeremy welcomes members of Her ALS Story to talk about the power of connecting with people who are on a similar journey while living with ALS.

Reflecting on ALS and the Military
Recorded on November 10, 2022

Jeremy is joined by Gerald McCormick, a veteran living with ALS and former state lawmaker in Tennessee, reflecting on the connection between ALS and military service and digging into some ways to engage in advocacy to move the fight against ALS forward.

Kicking Off Family Caregivers Month with Kristina Woody
Recorded on November 3, 2022

Jeremy welcomes Kristina Woody on to talk about her role as a caregiver to her husband, Lamar, and to reflect on what more we can do to support family caregivers.

 

Learning Opportunities

Maintaining Family Celebrations During a Journey with ALS
Monday, December 19, 2022, 2:00 p.m. ET

 
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The ALS Association Greater Sacramento Chapter
5701 Sunrise Blvd.
Citrus Heights, CA 95610
(916) 979-9265

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