ALS Ice Bucket Challenge Progress

 
The ALS Association

  Monthly e-Newsletter of The ALS Association Greater Sacramento Chapter

 

December 2022

 
 

Greater Sacramento News & Upcoming Events


Greater Sacramento Highlights
Proudly Serving 24 Northern California Counties

CaregiverRetreat_CaregiverGroup_2023

 

Celebrated Caregivers Enjoy a Restful Retreat

On January 24th, nearly 15 caregivers gathered in-person at the Caregiver Retreat at the Sylvan Community Center in Citrus Heights. Our beloved caregivers were treated to a day of relaxation filled with yoga stretches, making body scrubs, a comprehensive financial planning seminar, and an interactive stress management workshop. Thank you to all our caregivers who give so much of themselves everyday to take care of their loved ones. To learn more about other caregiving opportunities, please contact Shawna Stinson, Caregiver Support Manager.

 

 


Greater Sacramento eNewsletter Highlights:


1. Caregiver Strength Training

2. Upcoming Virtual Support Group Meetings
Click here to read more.

 

Scott Kauffman: Where We Are in the Fight Against ALS

We spoke with Scott Kauffman, chairman of The ALS Association Board of Trustees and caregiver to his son, Stephen, who is living with ALS, to look back on the achievements made in 2022 and learn more about what he sees ahead in 2023.

 

ALS Association Leads Fight to Ban Life Insurance Discrimination in States

Maryland lawmakers are considering a bill spearheaded by The ALS Association that would prohibit life insurance, long-term care insurance, and disability insurance policies from discriminating against people based on the results of a genetic test.

 

Early Career ALS Researchers Receive Vital Support through The ALS Association’s Milton Safenowitz Postdoctoral Fellowship

The ALS Association has awarded more than $700,000 to support five promising early career scientists through its Milton Safenowitz Postdoctoral Fellowship Program.

ALS Around the Globe: Improved Access to ALS Multidisciplinary Care—The Science of Where

For people with ALS, having access to an ALS multidisciplinary care center has been proven to both extend survival and enhance the quality of life for the people that attend. Clinics are neatly plotted on our locator map, making them easier for people living with ALS and their families to find.

 

ALS/MND Around the Globe: Looking Forward with Hope for the Future

More than 200 leaders from over 40 countries representing the International Alliance of ALS/MND Associations' many member associations came together, both in person and virtually, to share updates on the progress being made around the world in ALS care, support, technology, science and organizational development.

 

From One ALS Family to Another

Looking back on the beginning of 2022, I would have never anticipated telling my family’s story to so many with the help of The ALS Association. I was working two jobs as a nurse, transitioning to another clinical position, all while trying to support my husband Lamar (diagnosed with ALS in 2018) with his goals toward completing his college degree, and maintaining the busyness of motherhood, raising our 8-year-old daughter.

 

Honoring the Legacy of Stephen Hawking: Reading for the Stars to Help Fight ALS

Stephen Hawking, the world-renowned British scientist, professor, and author, is regarded as one of the most brilliant theoretical physicists in history. But what Stephen was also well-known for was his extraordinary life living with ALS for more than 55 years. To celebrate what would have been his 81st birthday, one elementary school in Seattle is honoring his legacy by inspiring young readers to learn more about ALS while helping to fight the disease that took his life.

 

Podcast Episodes

Making Video Games Accessible for People Living with ALS
Recorded on January 26, 2023

Your host Jeremy talks to a team of researchers in Australia who are looking into the ways video games can be more accessible for gamers living with ALS.

Expanding Access to Clinical Trials
Recorded on January 19, 2023

Jeremy explores efforts to increase the number of clinical trials and expand access to those trials with renowned ALS researcher, Dr. Merit Cudkowicz.

Revisiting Her ALS Story
Recorded on January 12, 2023

As we take a little break this week, we invite you to revisit one of our episodes released last year featuring Her ALS Story.

 

Learning Opportunities

ALS: Quality of Life and Mindfulness
Monday, February 13, 2023, 2:00 p.m. ET

 
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The ALS Association Greater Sacramento Chapter
5701 Sunrise Blvd.
Citrus Heights, CA 95610
(916) 979-9265

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